Tag Archives: loss

Stuff Sarah Says

Crisis

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Crisis. An interesting word when you hear it or speak it over and over again to yourself in a short period of time, am I in crisis? I am in a crisis. A mental health crisis, meaning, a moment in time where I am a potential danger to myself, if not others. A moment in which my ability to make sound decisions has come into question. A crisis of consciousness — as in I have TOO MUCH OF IT on account of the fact that I very much want to not exist anymore, not now, not in this moment. I don’t want to be here anymore.

The first year after we lost my stepfather, I would wake up in the apartment that I shared with my mom, his wife, where we lived together still surrounded by his things and when she was in crisis I would sit with her until it passed. In the year after her death, I would be in significant moments of crisis as my boyfriend slumbered peacefully in the bed beside me as I sunk to floor in the cold moonlight and desperately tried to make peace with the sudden terrible desire to die, hating him a little bit for being oblivious to the tempest raging in the room beside him. And now I am here: hours post-triggering event, still slowly circling the drain of my consciousness just waiting to fall off the edge into what? I don’t know. It never occurred to me to care aside from my literary sensibilities warning me away from the phrase “into oblivion” — if you must be crazy, try not be be crazy and also a cliche. Make no mistake, though, that is what I want: nothingness. Perhaps not forever, but just until the storm, this “crisis” passes.

Even if the crisis never passes because it is ME I am the critical component here and the harbinger of my own descent into madness. I am the failure. I am the reason for my own sadness.

I just want to hurt in a way that I can see and touch. A pain that I can feel on the inside and the outside. I want to grasp something tangible and say THIS. This hurts, it is injured and it gives me pain and because I can touch it with my hands not only am I positive that it is real and that it is there, but I am also confident that it will heal someday. It’s a strange sort of drive that makes a person want to harm themselves — mostly, I think, it is the innate desire to have one’s insides match their outsides.

In the middle of the storm, I recorded a few of my racing thoughts. The state of crisis lasted for a few days, which felt bizarre at the time. I think that I have often considered a “crisis” to be a singular moment of tragedy, a precipitating event for a Before and an After. However, after this crisis was triggered, I saw that it bloomed into a complete mental and physical state that took several days to subside. Days during which I didn’t know exactly where I was, except for the few brief moments of clarity and presentness that punctuated the dark.

I caused myself physical harm in that time. Self-harm has been a constant blip on my radar for years, but it’s been manageable. During my crisis, the desire to self-harm bowled me over, seducing me with promises of equilibrium. Where I once felt that I was spinning out of control, my focus narrowed and concentrated on a single point in time, a singular feeling of physical pain that obliterates all other sensation from my mind. In that moment, it was a welcome reprieve, but in the bright light of day I was disappointed and ashamed of myself — not only because I had resorted to self-harm, but because I had allowed myself to be triggered and suffer a crisis at all.

I like to envision myself as fairly invincible. I frequently imagine myself in horrible situations and think myself through the step-by-step reactions I would deploy to control and ultimately survive the situation. In my own mind, I am capable of withstanding absolutely anything. In life, however, I find myself wanting. It becomes clear to me that I am not, in fact, invincible.. I am actually vulnerable and weak, and in many ways, defunct.

I can’t get pregnant. My body seems to have forgotten how to make itself a host for a new life. Despite trying for over a year, we’ve come no closer to growing our family, and I know that it’s my fault. I can’t get pregnant and my heart is broken. This isn’t how it was supposed to be. I think back to all those times as a teenager, my girlfriends and I taking turns with the awful possibility that we had gotten in trouble. Too young to be mothers, so we prayed and prayed please God don’t let me be pregnant. Now all the manic energy that went into counting the days until we bled has been translated into a deep emotional clenching trying to hold it in and support a life that we are desperate to give birth to. There was a genetic legacy that I was rather depending on, that I have since been discouraged from cashing in. None of the women in my family have been infertile; at least, not that I’m aware of. One of the last things my mother ever told me what was a good mother I would be someday, speculating how easy for me it would be to get pregnant once I was ready, and I believed her, of course, because mother knows best.

So now a new crisis: a crisis of faith. Ever the believer, ever the hopeless optimistic, I’ve not yet given up the dream. But it has cost me no small measure of peace to hold on with such determination, as if I could, by sheer force of will, make myself conceive. It’s ridiculous. I am no Mary and there is no reason to expect Divine Intervention. After all, it’s not exactly uncommon. Secondary infertility, the inability to become pregnant despite previous successes, happens to a fair share of women. Though if I’m honest with my myself, the birth of our daughter nearly three years ago is truly nothing short of a miracle. We struggled to get pregnant, and I struggled to carry her past those first tremulous weeks where it seemed all too likely that she would just slip away, out of my body and out of existence. It would appear that Moira, fated to be born, was the exception, and that my wasted body, this useless mass of flesh, has no miracles left to give.

Every wretched cramp that twists my insides, every drop of wasted blood, every excited announcement of another woman’s fecundity is a thorn in my side. Salt in the wound. I am so angry, I want to scream at someone. I want to make another person feel as hurt, as dispossessed as I feel. I want to give this grief a name and a purpose and to make this pain wearable, apparent. I want everyone to know I’m a fucking open wound, just walking around, waiting to hurt.

And then, the guilt. As I’m reeling through these feelings of loss and failure, a part of me comes to attention to remind me, with cruel alacrity, that I am not, in fact, as disenfranchised as I may feel. I have a beautiful daughter. I have a wonderful career that I love, and a family that loves me, and there are starving people in China, for crissakes, so what’s your fucking problem? You are not a victim. I am not a victim of anything or anyone except myself. I ought to be focusing in on the good things in my life with humility and gratitude. After all, there are scores of women out there, some of whom are close friends, who have been unable to conceive at all. At least I have one child. One perfect, lovely, intelligent, beautiful child. I shouldn’t be so selfish, so greedy, as to wish for more.

But it just isn’t fair. Perhaps it’s the Libra in me, this constant preoccupation with fairness that so brutally trips me up when life becomes chaotic and unreasonable, as it is wont to do. Life isn’t fair, of course, and I know that. But I’m stubbornly resistant to the notion, unwilling to capitulate to fate. I reckon that if I do everything right — if I eat right, I exercise, I keep healthy, I take my vitamins; whatever — if I do all the right things, then I ought to get the outcome that I want. That’s how we’re often taught to look at problems, excepting for those insurmountable challenges that are so far out of our hands that we are instead told that it’s God, or the Universe, or Fate, that will decide. Just be patient. Relax. Whatever is meant to be will be.

What rubbish.

I am, or at least, I have considered myself to be, a spiritual person, but instances like this test my faith. It incenses me to hear that “God has a plan” or “You never know what the Universe has in store for you.” Bullshit. I have plans. My plans aren’t good enough for God? The Universe is withholding my happiness from me because It knows better? Ridiculous!

These are the uncharitable, heathenous thoughts that intrude upon me every waking moment. I am painfully aware of how unreasonable my sadness and frustration have made me. As this writing has proven, I vacillate between petulance and shame frequently. I am struggling to float, let alone rise above the tide. Yes, I ought to deploy some focused gratitude, and center myself around what is really important. Yes, I am at the mercy of my biochemistry in some respects, but I am responsible for how I respond to the changes in the tide. I am aware of these truths and more, but the sadness and disappointment are indefatigable and merciless. I am as trapped within my spotty mind as I am within my troubled body. What is broken cannot always be mended.

 

Stuff Sarah Says

Yuletide Blues

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Christmas-time is a difficult time of year for everyone, it seems. All of the togetherness, peace, and good-will toward men comes with a grand helping of isolation, sadness, and guilt. Without meaning to, the holiday season does its damnedest to remind us all of what we’ve lost.

Christmas was a big deal to me when I was growing up. My mom was positively possessed of the holiday spirit. Every inch of our five-bedroom house was decorated; the banisters festooned with garlands, mechanical singing-and-dancing merry-go-rounds on the landing, and an eight-foot-tall tree front and center in the living room. Our hand-made stockings were hung with care o’er the fireplace with limited-edition stocking holders care of the Disney Store. Special towels and holiday-scented soaps were strategically placed in the bathrooms. Stuffed polar bears, reindeer, and Mickey Mouse in a Santa hat were my once-a-year friends. These artifacts became integral to my experience of the holiday season. Without them, the holiday felt pale, lackluster, deficient.

The year I turned eleven was the last of the great Christmases of my childhood. You just can’t stuff a two bedroom apartment with yuletide glee the same way as a two-story home. Being a child of divorce made it happen that Christmas time was more “hum-bug” than “ho-ho-ho”. As I grew, I came to realize that this meant there was no home-base to return to. No childhood bedroom filled to the rafters with relics of my past. No safe-haven to return to after a bad break-up or a fight with the roommate. There was no longer a place to safely store the artifacts my my childhood until such a time came for me to pass those things on to children of my own.

Things disappeared gradually, so much so that I didn’t realize they were missing until it was too late. I assumed the ubiquitous storage units my parents each rented when they moved separately into sad-divorcee apartment blocks would be kept in perpetuity. I assumed that both my mother and father knew, instinctively, that I was counting on keeping my great-grandmother’s china, our family albums, and other assorted pieces from around our home. I assumed that my mother’s horde of Christmas decorations was just as sacred to the adults around me as it was to me personally. In retrospect, perhaps it was all wishful thinking: I wanted these things to be true.

Things were jettisoned over time, in part out of necessity. When my mother and stepfather moved from California to Hawaii in 2003, they could only afford to ship so many things with them, and my grandmother only had room in her garage for so much. Again, I assumed that the things that were being saved and stored were the things that mattered so much to me. In the end, I won’t ever know for sure if that was true.

I came to live with Mom and Al in November of 2004. By Spring of 2008, they were both gone, consumed by separate but voracious illnesses. When Al went, we kept everything. A closet full of aloha shirts, a silver menorah, and a baby grand piano neither of us could play. When Mom got sick two years later, the decision was made that she would move back to the Mainland for treatment and stay with her mother. The piano went with her, but a great deal of Al’s other belongings were passed on to his daughters or donated. We boxed up our whole apartment, including most of my journals, photo albums, and knick-knacks — I was going to live in a much smaller place with a roommate and I wouldn’t have space for it all. I assumed (what was that thing your mother always said about assuming…) that everything would be stored at Grandma’s house, next to great-grandma’s china and Mom’s Christmas Horde. After Mom was gone, it gave me comfort to know that once I was a real grown-up, I could go retrieve those vestiges of our shared past.

We lost a great many things in that fire that consumed my mother’s life. She was more than just the person that gave birth to us. She was our home and the lynch-pin that held our family together. Our greatest cheer-leader and supreme boo-boo kisser. When she went, I lost my friend. My siblings and I, we lost our memory-keeper. And in the intervening years between losing my mother and having a family of my own, I lost my history.

It’s all gone, you see. Every journal I kept from age 13 until 20. Every note and token of love from my first love, which I saved in a (literal) heart-shaped box. Crappy candids of my friends and me in school. Baby-blankets and a sweater knit for me by my Grandy. All of the tangible pieces of the first twenty years of my life. Great-grandma’s china. And all of my mother’s holiday collection.

I frequently force myself to remember that these are just things. Things are not love and they can’t replace the people that you’ve lost. I try to remind myself that I don’t need to cling to these fragments of my past or of my family, because I’m making a new family and building new memories. But it’s hard. It’s hard to decorate a Christmas tree with my daughter and think of a legacy of joy that I won’t be able to pass on to her. It hurts to sit around a table of my in-laws and listen to them tell stories about my husband as he was growing up, knowing that I can’t reciprocate by sitting him down with my mother and having her relive my history for him. It’s sad that so much of what we all seem to take for granted as being permanent and unchangeable, is in fact completely fragile.

I have had to let go of a great deal, but I carry on with traditions and hold my new family close. I’m M’s mommy now. I’m her history-keeper, and I take this appointment seriously. Her stories are written down in baby books and documented in photos. We are building a life and a foundation for her to jump off from and I will make sure that it persists in case she ever wishes to return. Every year, we buy a new ornament and add to our Christmas collection, rich with fondness for what we have and bittersweet joy for what we lost.

image
Wrong. All we can do is learn to float.

 

Stuff Sarah Says

Some days

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One year, my brother sent our mom a birthday card that really made her smile. It wasn’t one of those Hallmark deals with corny poetry and glitter — it was just a cheap little card. It had a photo on the front of a little boy sitting on the steps outside of his school, with his lunchbox beside him and his head on his lap, as if he were crying. Inside the card it said: “Some days, I still just want my mommy.” I think she loved it because she loved feeling wanted.

I think about that card a lot, particularly the sentiment printed inside: I just want my mommy. That thought wandered into my head the other night, as it often does, when I suddenly realized the date. March 8th. March 8th, the absolute worst day that ever was, ever.

In the seven years that have passed since she died, I have never gotten into the habit of honoring the anniversary of her death. March 8th is not the day I choose to remember her. It isn’t the same as those birthdays, Mother’s Day, or Christmas. Or any of the other happy occasions that bring her to mind and make me wish she were with us. The anniversary of her passing is a black mark, a day that got knocked off the calendar in sheer repulsion. A day too sad to commit to memory.

A pattern has emerged in the last few years. The anniversary goes by without my paying any mind — no more than usual, that is, because I think of her every day — but I don’t think about holding her hand in the hospital bed, listening through the night as she struggled for breath and the morphine slowly stole her life away. I elect to avoid that place whenever possible. It is as if I am walking down memory lane, the branches pulled aside to clear the path ahead. The coast is clear and then smack! One of the thin, springy branches snaps back and whips me in the face. I often feel guilty for having forgotten: I mean, here I am years later, still locked in a prison of grief. Should I not have kept count of all the awful days that have gone by and how many times I have needed her? I am forever affected by her death, but somehow, I sometimes forget that she died.

When the realization hits me, I count on my fingers — how long has it been? Seven years? Seven. Years. How it that possible? How I am still walking around with this hole in my gut, like the umbilicus that once tied me to her never healed? But then, maybe it didn’t. What is the shelf life of a mother-daughter relationship after the mother is dead and gone? At what point do I cease to be hers?

When shall I no longer wish to curl up beside her warm, soft body, my head in lap as she strokes my hair? When does a child no longer want or need their mother? I can’t fathom it, and I don’t want to. I don’t want to let go, because she was mine and I was hers and whatever wrong she did — and there were wrongs — and whatever I took for granted — and I did so, regretfully — she is mine. And I am hers: a mournful child crying on the front stoop, waiting for my mommy to pick me up and make me feel good again.

Stuff Sarah Says

A perfect storm

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Actor Robin Williams took his own life today. By all accounts an extremely funny, extremely intelligent person, he lost a battle with depression. I’m probably more upset by this than I have any right to be — Mr. Williams being an actor and a public figure whom I enjoyed does not mean that he belongs to me in any sense. It doesn’t seem right to eulogize someone I have never, and now will never, meet, despite his featuring prominently in the entertainment landscape of my childhood. Maybe it’s just that his humor resonated with me, because I see similarities to my own sense of humor… and maybe because his actions today resonate with me, also.

Seems to me that it goes something like this: A good sense of humor is an indication of intelligence. Intelligence is a predisposing factor to depression and mental illness. People who are depressed are also more likely to be humorous, probably as a result of their higher intelligence and perhaps as a result of coping mechanisms developed to mitigate their depression.

Smart people are also marginalized in our society. Those who suffer with depression and other mental illnesses are likewise stigmatized. We use humor to deflect and cover up our wounds, and then we suffer quietly. Alone. As we spend more time alone, we are observed to be introverted. People who are introverted, on the whole, seem to be less desirable companions and are therefore sought out less by their peers. In the end, you get a bunch of smart, suffering, funny people with no close friends.

And then we kill ourselves because human beings aren’t meant to be islands (Bon Jovi had that right) but what choice does a person have when their territory is being colonized by naysayers and doubters and people who, in general, just want to make you feel bad for being who you are and enjoying what you like.

Seriously. Fuck those people.

This is what being a Stigma Fighter is about. Standing up to the unenlightened masses who would prefer to see a greatly homogenized culture instead of embracing and celebrating our differences, mental illness included. I wonder if Mr. Williams, had he known about our mission, would have joined us. Something tells me he might have done just that.

Stuff Sarah Says

A roadmap of grief

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May is a crummy month for people without a mom. More than at any time of the year, there is a constant reminder that you have lost that most influential person in your life.

Thank you for that fine offer, Pandora, but no. I'm not sending anyone flowers this year. Again.
Thank you for that fine offer, Pandora, but no. I’m not sending anyone flowers this year. Again.

Even as I worked in my office today, there was a Mother’s Day Craft Fair going on outside. Nope, no thanks. I don’t want to look through the various trinkets and see what she might have enjoyed.

For the past several years I’ve been quite happy to celebrate my mother-in-law on Mother’s Day and leave it at that. But I’m a mother this year. There are a multitude of new layers to my usual Mother’s Day grief that weren’t there before.

In a case of bizarre synchronicity, I found myself having a meltdown over my motherlessness just earlier this week in reaction to something that had nothing to do with Mother’s Day approaching and everything to do with needing to talk to my mother. It’s possible that subconsciously, I was feeling a little bit off-center already due to the holiday coming up and was therefore extra sensitive, but whatever the reason my desperate need to speak with Mom coupled with my despair at leaving my daughter in the care of others while working and my umbrella fears of inadequacy converged to create a big, unholy mess. At the end of the day, I sat down with M in my lap and thought that all of it, all the tears I had cried that day, were actually about my need to be reassured that I’m a good mother — and the person I needed to hear it from isn’t around anymore.

Truthfully, I don’t miss her with my whole heart every day. Most days, in fact, I’m practically normal. But sometimes — and more often since becoming a mother myself — there is a day when I need her input. And what I’m learning is that this is normal. Particular to the loss of a mother, the grieving process doesn’t end at acceptance — it doesn’t end at all. It is a process, and ebb and flow of sadness and peacefulness, that continues for a lifetime. This is a comfort to me, as there have been several exasperating moments over the last six years when I’ve wanted to bang my head against the wall — “Why aren’t you OVER it already?!” Well, because I’m never going to “get over” it or “past it”. “Moving on” really isn’t an option for those experiencing this kind of grief. Our roadmap of the grieving process is really a curriculum of coping techniques and emotional management. And then being kind to yourself when you have days during which coping is unmanageable. As Hope Edelman says in her book Motherless Daughters: A Legacy of Loss, there will be days when you are just as sad as you were on the day she died. And that’s okay.

I suspect that this Mother’s Day will be both the same, and a little different, from years past. I will miss Mom anew this year, because I’ve joined her ranks and she isn’t here to share that with me. I’ll give flowers to my mother-in-law and my hanai-mom, because they have graciously mothered me in my mother’s absence. And I’ll finally experience Mother’s Day from the other side of things — a side that hopefully includes a little bit of sleeping in and breakfast in bed.

Yeah -- that looks like my kind of party.
Yeah — that looks like my kind of party.
Stuff Sarah Says

I remember you,

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But the day that marks your absence is not the day I choose to honor your memory. I have worn the loss of you like a shroud, a heavy blanket to curl into on harsh, friendless days. Daily I attempt to commune with your spirit and resurrect your voice in my head — “Please Mommy, tell me what to do.” I miss you with a palpable need, one that starts in my toes and reaches up to my fingertips, reaching out for you. It triggered in me a irreversible reaction, a sweeping depression, an ebb and flow of mania and sadness. I have been lost in those tidal waters for years.

I remember you. I miss you. I am not alone.  The loss of you means our cups will never quite be full — all love is not created equally when you’re aching for the love of someone who can’t or won’t love you the way you need to be loved. All the love in the world, good people that surround us and carry our will, cannot replace what was lost when we lost you.